Few years ago I started to stop breathing during the night, many folks do but it is usually blamed on being overweight, especially obese. When I started being ill and finally diagnosed as being a sarcoid in 2010 my weight had dropped to about 8st and in kilograms it’s something else, I was put on prednisolone (Steroids, still am) and later azathioprine (chemotherapy, still am). At my peak I was on 40mg/day pred, this was for about two months. In that time I should have got massive yet I didn’t but I did get up to the weight of now which is about 85k and in stones it’s something else.
That weight is over the advised but my bloods are now the best since 2010, though overweight I should have been massive, obviously this points to the sarcoidosis being active, very active. So, my night time breathing became a problem. It now needs cleaning and filtered but the cpap stopped the breathing difficulties. What has started happening, I feel like my body powers down then next thing I’m wide awake bouncing around on my bed, after what feels like a shock. I think my heart has started to stop beating during the night, something electrical? gets it going again, it really is an immense experience and to be honest it does not scare me.
I will book into the doctors even though I start at the Harrogate hospital on June 12th 2018. It’s more than probable that at 53 years of age yet living in an old body is the reason. For the past few years I have been seeing the number 53, I’m 54 on July 27th, it’s getting close…
And what I think about seeing the light, ha.