Stuart Briggs

Living with sarcoidosis, the good, the bad, and lots of in between.

Author: Stuart

  • Its a mystery or not

    One thing is for sure, this last week I have never felt so tired, shattered, or exhausted? which ever word fits best, but I will know more on the 22nd January as an appointment has been brought forward. Had some bloods taken last Monday which is the first of the weekly checks?

    Appointment moved.

    It really isn’t a big mystery, rarest of sarcoid, a few drugs, getting used to organ transplant drugs and other stuff, and so my body is constantly fighting, and will arrive through in a better manner, erm, my manner is fine ha.

    Its all a big mistery.

    Its like, a cloud just above the field that can be touched, reach out and we can see what most others don’t…

  • Matthew Briggs, happy 17th son

    How time goes so quickly, and how not enough time. Hope you have a brilliant birthday son. One day I should hope to treat you and Jacob in some kind of ‘proper’ fashion. Love you both tons.

  • Eat yourself, say’s Bob

    I reckon if folks could eat themselves, then most of us would?! Robert Plant, a terrific moment captured by Lori Spencer. It really is not just the covering of that letter but the whole body posture!!!
    Bob

  • A – Day

    No not an anal day, mind you, erm, right. Today I started on the Azathiprione, haven’t a clue why these meds get given such bonkers titles!? They have started me on 50mg/day while still taking the 20mg/day of Prednisolone. I have to have my bloods checked weekly to keep an eye on the white cell count and bone marrow and something or another?

    Aza 1
    This is the first time I have ever seen any meds advice papers actually say it is used to treat Sarcoidosis amongst other lung diseases, really impressed with that.

    Aza 2
    Here we can view that the moderation in alcohol consumption needs to be adhered to? I have also been advised that the fatigue can be somewhat crippling while they find a ‘status quo’ with the meds.

  • Latest on the sarcoidosis

    Just spoke with Airedale Hospital, they have the latest results in but can not give them over the phone. I have to carry on with the current meds and dosages and they will be contacting me. It does make one worry although I know the next stages, as we get closer it gets more unnerving. In absolute honesty I would really love the sarcoid to fuck off and leave me alone.

  • Menu problem sorted.

    Me and technology eh! I had too many menus and so have had to slim line them down a little, but a lot more will be required, erm, and so a few changes to my site will allow some very interesting post’s, but do check the Vague page!!!

  • Site problems

    Two menus and the pages within have disappeared, some pages have also vanished, unsure why?

    It is still a positive know though…

  • Occupational health phone chat

    Work have arranged for an occupational health doctor to call me on Monday, its not a problem and they are very welcome to view my records, they might need at least a week to work them out as many of my medics struggle to work me out!?

    I must get on with some of the mega ideas for post’s on here, absolutely loads, its that current buzz word ‘procrastination’ that seems to arrive at mind, and so I best carry on not making plans but stick to the agenda, plans can fail, agendas just need working through…

  • The British Lung Foundation on Sarcoidosis

    If you have a few spare moments it would be very much appreciated if you could check out the following link? Please do click here and learn about my condition – Sarcoidosis.
    Sarcoid 1

  • How to eat a tin of encore shrimp and tuna cat food made easy

    Does this really need much explaining? Because they were on offer, I accidently ended up ordering and purchasing cat food! The price was buy five for the price of three. I thought it was a bargain buy, though I did think they were tins of shrimp. Is Encore cat food fit for human consumption…

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