Sarcoidosis disability employment and support allowance benefit

Can sarcoidosis sufferers claim employment and support allowance
Can sarcoidosis sufferers claim disability payments

This could really depend where you live? Yes you can and should get disability, depending on how you are coping with your sarcoidosis. Here in the UK it is a very lengthy and unfair process, Im still having problems proving various issues to the benefits system regarding my sarcoid, it’s a very bizarre system indeed, this I will update on as time progresses but I have taken my case to the very top of minister for health Andrew Lansley and head of long term care Paul Burstow – below you can view the first page of the letter received, and in fact the benefits system is the opposite to what the letter is claiming! My tribunal is set for 7th June 2012.


7 responses to “Sarcoidosis disability employment and support allowance benefit

  1. I have sarcoidosis and get esa and dla. Both higher rate. It is recognised though I do have antipolosipilid alongside it.

  2. I myself have had sarcoid for nine months now im on esa allowance but it wasnt easy for me to get on it lots of questions i also had to tell them all the meds i was on it ridiculous and i feel that gps benefits decisions officers need to be made more aware of our condition and how it can effect us as not enough is known about it

  3. I too have had sarcoid for six months now in my lungs and joints my lymp nodes feel like they are affected now as well im also finding it hard to cope i am so badly fatigued all i want to do is sleep i did eventually get on esa but not without alot of trouble from social security the people dealing with sickness benefits and all dont know enough about our condition its awful i feel for anyone with satcoid as it does really affect us even though im on sick i still have to go to work focused meeting which is hard as i have lots of bad days more needs to be learnt bout sarcoid so there is more help for all us sufferers

  4. I was diagnosed with sarcodosis 2years ago after a month in hospital. I too think this should be recognised as a disability there is soo mNy people with sarc. Most days I can’t move I’ve recently got a fracture in my foot could be due to sarcodosis. My whole body aches. I still work full time and have two small children I am only 33 years old. My knees are getting worse because go my fracture. I have also been diagnosed with cervical cancer type 2 which got treated after I complained I now also have vulva pre cancer which has become worse in the last 6 months because the nhs are soo slow.

  5. Linda connachan

    I have finally been diagnosed with sarcoidosis after nearlu three years .had ct scans xrays .biopsys so its actually a relief to have a diagnosis .one of my docs actually says to me hows my wee guinea pig ..i assue he meant he was trying to find what was the matter with me .any way they tried me on steriods never hrlped at all so I asked what else can u give me .he said nothing .so im.back to square 1 im so fed up.being in pain all over as its in my lymph modes and im hoarse all time cant speak .im just about managing my job .but for how much longer ive no idea just wanted treatment but there is none only steriods and they didnt work for me .

  6. Mr Rachid Hnida

    Yes good relief to find this Kind of information as I have also been suffering from sarcoidosis fo years .its affecting my nose and it’s chronicly inflammed and eating the inside of me .i have has 6 operations in my nose to reduce the inflammation and after each operation the pain increases and becomes Sarcoidosis has been uncontrollable and had left me with a chronic pain due to damaged nerves in my nose .i would describe the pain as suicidal.Hearing that the ESA does not recognise this painful disease has put me in more pain and depression as iam due for my assessment soon and so scared and have lost faith in this unfair system of this new government.

    • This information is mainly through my own experiences and of searches, we are not believed by most, yet most would not know how to believe us? they would also struggle, are they are a shambles to and for us? yet we also expect the truest of friends to believe and understand us – its a living, breathing nightmare, but we push on…

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