A neighbour, she knocked loudly on my door, she told me the parcel had been outside my door since Wednesday and then she asked if I was alright. Told her yes, I went to the doctors on Tuesday and all is OK. The look on her face didn’t believe me but I really did go to the doctors.
She said if there is anything she can do then just ask, I felt very old, a very old 53 years of age. I don’t have a mirror though I know my eyes were very red, my coughing has been really bad and the gum is still open from 5th December tooth removal. 10th January the hospital want to start taking more teeth out and to see if I heal (bone and gum), then the phosphates injection thingy stuff. I do not want to do any of that.
You know, I’m getting very tired of my Sarcoidosis and the ‘drugs’ but is it the time of year?
On Tuesday I told the Doctor I feel they are now just trying to manage me until my death. Since then I’ve spent most time in bed thinking – that my life has been one big cock-up and it should finish.
I’m so sorry my son’s have to go through this with me.
I just don’t post enough, though I do tweet and hope folks get to see some? At the beginning of November 2015, I started a typical cycle of being shattered, fatigued, tiredness, exhausted etc. Went to the docs, mainly because I had hit quite a low mood (more on that later). He has been pretty good with me, anyway he suggested some extra bloods testing. Amazingly within a few hours the results were back, I have zero vitamin D in my body.
So, I’m prescribed Invita D3. Two be taken once per week…
I did my usual and researched this drug, guess what, it carries a warning that patients with Sarcoidosis must be treated with caution, the warning is pretty much that this medication can be dangerous for us sarcoids. So, zero vitamin D in sarcoids is dangerous, as are the meds to treat zero vitamin D in sarcoids, jeez.
After phoning Addingham surgery, the doctor returned my call, he went through his BMA manual and found the advice in some small print, he thanked me and we are going to try with half the dosage.
More growths are happening inside my feet, especially the ball of the right foot. It can feel like I’m constantly walking on pebbles, so I’m awaiting various scans for this.
I have never felt so tired, and fed up. The mental health team have got me in really quick; it took only two week. I know it can take some folks months. I’m going to be treated with Cognitive behavioral therapy (be careful how you key the CBT into the search engine – ouch!) which we hope will work along side a current medication of Fluoxetine. When I did see the doctors screen it appeared to have a red background, that is a first time.
Maybe I never recovered from, from when I once returned home from work and found another bloke in my house with a quilt on the floor? Anyway, Try like I might for the past 12 years yet it has been one problem after another, fail after fail, and now the housing association want my home back because of the arrears that the benefits are refusing to pay? More than ever does this song mean absolutely what it states…
Ah ha, I love some old shots, just a few here. Though I can not find any from rock covers band Somerset Avenue – of which I played bass and backing vocals, or AC/DC covers band Highway to Hull of which I tried singing, not enough engine oil in my throat though!
This was great fun, humble beginnings as Reich Elm, I suggested Aurora, and that we also get a new singer, Peat went and in came the amazing Stevie ‘T’ and his superb fun!
I mean, look at that singing style, it actually fit that band, Sensei evolved into Phtang, it all stopped when I decided to be a dad, it should have been a short break but took 10 years to play with those guys again, we had some pretty good laughs indeed.
53/12 was my last band, enjoyed some of that but I really need a band that have a head as messed as mine ha! I still have the idea of forming a ‘FUT’ that would be a punk, rock, and blues type band, yet also a solo act? lets see eh…