Spread the word
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Its like, how much am I supposed to suffer before many, a very many folks believe me? I’m going to keep this simple with very minimal writing, photos should tell a little. Sarcoidosis mimics, masks, & mutates any other condition, known, and unknown. The following three photos are of my left foot. Oh, its only physical pain, that I can take, as for the mental trauma, that I struggle with.
This shit is real. I never ever expected to get stupidly ill at 45 years of age. Tried work through the brilliant Remploy, my body packed in. The UK’s welfare finally accepted what ‘all’ the medics were stating, and even backdated this.
Sarcoidosis is a cousin of cancer, but the names are very different and can grow anywhere upon within me without any form of warning. For the non believers, I’ve had enough of you, so fuck right off…
My feet are fucked, more later, but: Today, 30th October 2015, I collected my two pair of spectacles. Now, proper odd, as once I arrived in Leeds, my sense of direction went really weird. Eventually I found the Boots opticians entrance, then walked into the entrance to the left! What a fucking knob, so panicking I got sweaty, rushed out and turned to the mediate left: Boots…
These are they. The pair at the top are my reading ones, they are too tight. Boots knew this but I had to leave asap. I will return for them adjusting, but thinking if I learn better, then my medics advice to use sunglasses at all times can be in-cooperated?
After some treatment, last Monday a UK top ‘skin’ professor told me well done. This shit can grow anywhere in and/or out of me. Spread the Fucking word folks Ffs. Yet just please understand; There is more chance of remission with cancer. We don’t say this because we get attacked when we do, but we are looking at a reduced lifespan.
One of my ‘pet’ hates, is simply when folks compare illnesses and death. Illness and death is not a competition.
Here I am, left this alone for a while as I’ve been somewhat worried that sarcoid was on my heart. And here are the results…
Sometime’s very good natured folk’s leave chairs in reminder of who they are, were? More and more pubs are using outdoor furniture. Yet locally we are having a purge in patio and outdoor furniture stolen. It is so annoying that these low life scum destroy other folk’s good will. Proper pisses me off…
The last few weeks I’ve had some folks say (obviously indirect, & direct), I’m some kind of scrounger – annoyed is an understatement. I have invited a very many folks to live with me for a month, I doubt they would last a week. Anyway’s, you lot need to understand ‘Spike.’
Please get off your ‘dear’ right wing of hard core and understand? Oh, shhh, it will come to you – good luck.
The hospital consultant doesn’t think my heart problem is related to sarcoid (hope it isn’t, phew), so we wait for the days testing on 7th July. Told the doctor of my bizarre world, they seemed to get worse a few months ago when the Azathioprine dosage got doubled to 100mg/day, proper bonkers? And, it’s referred back to one of the top skin specialist’ at Yorkshire clinic as them damn feet, arrggghhhh. Oh, as for the heart, I would prefer meds rather than a pacemaker, I just think my body might reject? a pacemaker?