Stuart Briggs

Living with sarcoidosis, the good, the bad, and lots of in between.

Author: Stuart

  • Thats five week off the Pred

    Well – I start too many post’s with that so; Five week off the Prednisolone, on some other meds but how odd it can make me feel, the hands stop moving during the night, knitting needles push into the rear of my eyes, skin looks and feels weird, other stuff but my ankles and knees are a nightmare.

    Thinking about full on thermal underwear for the upcoming challenging winter, my first winter off the Pred and in work. Big big challenge that I will win, head says one thing the body tries to sway the other way…

  • A good strange time

    Well, so far this week things have been sort of steady, a good meeting at work on Monday with Remploy, my team leader, and department manager. I just needed to clear everything that had built up, including apologising about various things from myself. As for the sarcoid, hmmm, it is my first approaching winter without being on the bad good Pred, I can already feel stuff happening, keep those fingers cracked across…

  • Discrimination or not, that is the question

    Here is some truth through my passion of freedom of speech; freedom of speech, empty promises, over qualified, might get bored, and earmarked vacancies, but could it be discrimination? Jeez, this past year I feel that I have experienced them all, especially at work. Very grateful to Leeds Remploy for getting me into work at Enterprise, and very grateful to them too. But then, some facts.

    I was promised so much upon achieving that position, and so, that story begins… One thing is for sure, my sarcoidosis is certainly playing up due to some recent events, including the redundancy situation and my want of trying to progress. Read on…

    Redundancy

     

     

     

     

    This was at the beginning of August, though told not to worry its human nature to worry.

    Dot ankles

    First thing that happened was my Ankle dots, this is a first sign that the sarcoid is becoming more active.

    Bloodshot eye
    This is certainly an activity that sarcoids know only too well, it can quite easily develop into Bilateral Uveitis. On Friday 27th Sept both of my eyes started.

    Simply put I just could not understand why I failed at three interviews I should have walked into, other positions came up without being advertised that I was more than capable and qualified to do. This week I recieved a letter saying that my new position is gas restoration administrator, that is a high stress job, the most stressful in in the office that no one likes doing, especially on £6:60/hour, although I have the current tax credits but only till March 2014. If any working position a one in ten sarcoid needs to avoid its a stressful one. No wonder my body has gone and started reacting again, jeez.

    When I was at the initial interview I was told plenty of opportunities would be available for me to progress. At home I got a few phone calls from the manager who mentioned ‘off the record’ I would be able to progress pretty quickly with the qualifications and experience I have; qualified plumber, trained in the 5Cs by the SMMT, HNC Technology and Management through Leeds Metropolitan University, and been a manufacturing manager. I had two other jobs on offer through Leeds Remploy, also someone else from my current place of employment at Pottery Fields House in Leeds phoned to offer a position, but I had given my word to the manager of my future team.

    Lets cut quite abit out, I asked abit about progression, I was asked by another manager to take my 5C improvements documents and information with me, so I did, and after two weeks of no one showing interest I took them home, that was my first thought that I had made some kind of mistake, but glad to be working, proving to some degree that one in ten sarcoids can work, but I felt my chances of progression were much less than first mentioned.

    Lets cut quite abit more out, in June I got a chest infection and ended up on anti-pneumonia tablets, chest infections can unsually kill sarcoids, especially the mentioned one in tens, that I have officially been told I am, proper scary times that. Before being that ill I did not tell work how unwell I felt until later, my lesson learnt to be upfront fully about sarcoidosis. I had a staged return in July with yet some further promises of progression, by the end of July the medics said that they believed I had gone into remision – fantastic!

    At that point I thought I may as well start applying for other positions, and at the seem time my team got the redundancy notice, shit, bad timing for me as I need the sarcoid to stay none active. Three interviews later and those other jobs not advertised yet taken, phew, the reasons are absolutely garbage why I am not getting the jobs, the funniest of ‘your 5Cs knowledge and answer were not good enough’ eh! I’m trained by the SMMT – look them up! I even have my plumbing with the gas and pressure systems units. Before the interviews for one of the positions, I was told who would be getting it, then, I overheard two folks chatting about that job, but they must still get the C.V. in, yes that person got the job. I have started to be at a loss why I have not been getting jobs that I am certainly much more capable of than others! 27th September it finally hit me, from my previous experience we know a company is not supposed to discriminate but yes they do, it is not a nice feeling.

    In May Enterprise were taken over by Amey, at Pottery Fields House Amey work for Northern Gas Networks, I so thought my experience and knowledge of the 5Cs and construction should have stood me in a great manner of progression, and now the current position that I feel cornered into is causing the sarcoid to raise its ugley head again. Yes my freedom of speech, nothing and no one harmed here apart from my own facts and me. All I wanted was a chance to progress and help the company succeed. Other stuff happened, I am also very glad of being given the chance to work, but we are laerning just what causes the sarcoid to become lively. Now I will stop right here.

    Stu.

  • This crap about the public sector and strikes

    I did work in the public sector, only for a few years but, they are on great packages, I know folks who retired at 53! I know a fireman who went part time in his mid 40’s with no complaints. I know of teachers who said they teach because its ‘fucking’ easy – iv witnesses, oh but then they turn and say ‘its ever so hard’ when they want support. Unless your from a reasonably wealthy ‘not labour rich’ background then the public sector have a far better package than the private sector, its just that not many like to say so, but ffs its true…

  • Photo upload problems

    Folks, I have a good few photos and stories to upload, but, for some reason photos will not upload? Though today’s appointment went well with the doctor, for once no more drugs required! I have been off prednisolone for one month now, the body has been all over but we think its going ok? Still got to carry on with the Alendronic Acid for at least one year just to help build my bones up again, then we will scan them, still other drugs but im off the Pred!

  • Are those ears really burning?

    You know the old saying that when your ears are hot then someone is talking about you, well my ears burn quite often, and still haven’t a clue who she is!!!

    Ears burning

  • Rabbit by the track

    The train broke down, yet this little rabbit had a good bemused look at us, very glad it decided to run in the other direction as sticking to its one direction over the railway lines could have been messy…

    Rabbit at the track

  • Valley Parade with my sons 14th September 2013

    This game turned out to be really tough, once Wells had scored we thought it was going to be another walkover, we could see it on the pitch too. Colchester were very physical whereas the Bantams like to pass the ball about. At half time we were losing 2:1. The second half we were a different team, Wells scored the equalizer with a brilliant looping header, we could not believe the ball went in. A very worthy point but we are not going to win every home game!

    VP with lads

  • Various band photos

    Ah ha, I love some old shots, just a few here. Though I can not find any from rock covers band Somerset Avenue – of which I played bass and backing vocals, or AC/DC covers band Highway to Hull of which I tried singing, not enough engine oil in my throat though!

    Aurora 1

    Aurora 2
    This was great fun, humble beginnings as Reich Elm, I suggested Aurora, and that we also get a new singer, Peat went and in came the amazing Stevie ‘T’ and his superb fun!

    Gig time with Phtang
    I mean, look at that singing style, it actually fit that band, Sensei evolved into Phtang, it all stopped when I decided to be a dad, it should have been a short break but took 10 years to play with those guys again, we had some pretty good laughs indeed.

    53 12
    53/12 was my last band, enjoyed some of that but I really need a band that have a head as messed as mine ha! I still have the idea of forming a ‘FUT’ that would be a punk, rock, and blues type band, yet also a solo act? lets see eh…

  • 7th September 2013 was a great day

    I will do a good write up a little later, but, Andy and Rach’s wedding day was superb, one of the best events I have been to. It is one of those longer moments of time that you certainly do not want to end. Emotions were brilliant all the way through, and some amazing moves with the grooms sister, Julie.

    With Julie

Follow by Email
WhatsApp
FbMessenger