Sarcoidosis can put many folks off exercising, its understandable due to the difficulties sarcoid can put us through. Something that puts sufferers off is the initial get up and do it, you can it! I explain how I try and work through my exercising here, you to really can, have a view.
This has just gone to the tribunal;
Hello tribunal service folks.
I received the re-arranged appointment for the EaSa tribunal/appeal to 7th June 2012 at 14:40, on this day I also have an appointment with the Neurologist at St Lukes hospital, Bradford at 8:40, as you can – or not – imagine the hospital appointment is more important, the chances are though, and public transport permitting, I should still be able to get over to Leeds in time.
I also enclose three attachments, these are communication letters leading upto June 2011 at my then employers Airedale hospital, you should read them in the order that I have numbered.
Dr Smith is the Airedale occupational health physician, the letters are explaining a few things, including; one, my sarcoidosis prevented me from working and two, the dosage of 20mg/day Prednisolone was too high.
As of the 2nd of June 2011 (the date you mention the tribunal is to cover), I was still on 20mg/day of Prednisolone.
If required I can get a letter from my doctors explaining the same to that date, the problem is that will cost me £35…
I hope this information is useful to you, I take it all other information from the 3rd June 2011 would be irrelevant at this stage? including my increased dosage of Prednisolone to 40mg/day.
Yours with sarcoidosis and battered lungs.
Stuart Briggs
Posted in Advice, Blog, Sarcoidosis
Its almost two years since I first started with seriously bad problems in my eyes, eventually sarcoidosis was diagnosed, it was obvious that sarcoid had helped bring on bilateral uveitis. Some of the scariest times of my life followed, I struggled with simple things like filling out forms and counting out bus fares, crossing the road was another matter, judging the kerb and traffic was a huge challenge.
Thankfully things seem stable, well, my lungs, although one of the nodes is now slightly smaller the others are the same, the breathlessness can be so frustrating, but I feel sure the direction is still good. Onward and upward…
And so the evidence builds, my evidence against the corrupt benefits system. I have to prove that I was unable to work as of June 2011. As can be viewed here I started to be ill in June 2010, in fact it was earlier but this is the time I could no longer work and had to go on the sick. Eventually we found it to be a condition sarcoidosis, at the time I was employed as a healthcare support worker at Airedale Hospital.
As of June 2011 I was not allowed to return to work, jointly because of my medication and the fact I have sarcoidosis, both of these combined and working with ill folks are not good ideas as it could well have seriously put my health in a perilous position, you can view one of the letters from the hospital doctor below.
It should be clear cut in my favour but as so many sarcoidosis sufferers find out the system and its helpers in ATOS seem to struggle to recognise sarcoidosis, what is sarcoid they should ask, well sarcoidosis is/can be a serious medical condition and despite many folks views it can most certainly be fatal.
It were not until the end of 2011 that the consultants decided to reduce my Prednisolone, that resulted in my lungs getting some serious attacks from the sarcoid and therefore to double my original dosage of 20mg/day to 40/day.
Updates will follow.
No technical terms here, just easy to explaining can sarcoid return after it has gone away or into remission, sarcoid has no cure but it can be treated, read about can sarcoidosis be cured go away or come back
Yes blindness can be temporally and/or permanent and usually through Bilateral Uveitis. What are sarcoidosis eye symptoms though? its a question that seems to be brought up quite a bit, here is information on eye problems brought on by sarcoid including blindness. Hoping this straight forward explanation helps those who certainly – like me – do not like too much technical terms within many organisations explanations!
This is the link; What is Bilateral Uveitis?
With so many questions being researched and asking “what can sarcoid cause,” I decided to write and explain in easy detail as many answers as possible for you to view, please do continue reading can sarcoidosis cause these problems
What is a sarcoid? my very own song about living with sarcoidosis, it must be the only one on the planet, have a look and spread the news about sarcoid, enjoy the video – great sounds at the end of what is a sarcoid being cut down!
Posted in Blog, Music, Sarcoidosis, Videos
Tagged Sarcoid, Sarcoidosis, Solo acoustic performance.
Hugely therapeutic loving the sounds, they allow way too much thinking to go on. Ripped my arm to bits getting into the vein – again! this time I have got a photo but cant post it, will asap. To bond, its just not happened how I would have loved it to have, well wrote post in the future explaining, my fault I reckon.
So, will they will find something and treat it, find something and not know how to treat it, not find something and not know? Either way its still a worry. Its going to be a long night, strange dreams due, in fact soon I might do a seven day diary of my dreams, oh dear!!!
