Category Archives: Sarcoidosis

Boredom big time.

Back at Hospital on Wed morning with my eyes and then on Fri its an Endoscopic Ultrasound for my chest.  I am so completly fed up and bored-Need treatment ASAP and then get on my bike not to allow the steroids getting me FAT!!!  Fatigue is another thing though-I have never known tiredness like it.

I try get pics and videos loaded, I have also got a sketch pad and pencils to try start drawing, also the short stories to get on with, but how I would love a guitar or 3, perfect for the boredom-though concentration is also abit difficult…

Sick pay is now SSP and not too brill to say the least, when treatment starts I hope keeping healthy and fit on my bike will enhance my recovery-It will work out fine.

Nearly there.

It now appears that I have Sarcoidosis and BiLateral Uveitis…  Need more tests but very close-Prefer Sjogrens syndrome!!!

Getting closer now.

Went to see chest specialist, they very close tp finding out what I have got.  The X-ray shows a shadow on my chest, the CT scan has confirmed 2 ‘things’ are abnormal in my chest.

Next now is an Endoscopic Ultrasound in my chest-this will confirm what he thinks it is-and it is treatable.  All confirmed in the next few days.

Havent’t a clue.

I got CT Scan results back, went to Hospital and it appears I have 2 ‘Things’ on my Lungs-they couldn’t give me any more info apart from, as well as possible Sjogrens I might have another 3 illnesses, FAB stuff eh…  Urgently awaiting Lung specialists now;

A body draining of moisture.
Tears, though try they dont arrive.
Sure it will work out ok?
But squint to see it through dried eyes.

I think I should carry my sketch book.
Only 2 and half pints, Strolled on home.
My hat is firmly off.
To all those folks through hard times alone.

I have never felt so Fed up, Alone and Lonely-I feel dreadfull all round.

Haven’t a clue.

Mumps so I thought, as did the Docs and folks.  Tons of tests and X-ray, and then it was-maybe it still is-Sjogrens Syndrome.  Now called in for an upper body CT scan with Contrast, I have never been so scared in my life-or have I?  Mumps so I hope…

Back again!

Its been a while but I been busy and also ill-inc Mumps…