Stuart Briggs

Living with sarcoidosis, the good, the bad, and lots of in between.

Author: Stuart

  • Though it’s not all doom and gloom

    Just been for the flu jab, managed to get an appointment with the doc, he has referred me to both, Airedale and Bradford hospitals, see who gets me first? Still awaiting my consultant’s secretary to call. The doc did say I should be in hospital, nope, ceratinly not at this time of year, where possible I need to avoid ill folks. My lady friend from Ssafa is visiting me this PM, be great to have some female company, just company actually.

  • Ambulance trip to Airedale hospital

    The last few posts have certainly been about the sarcoid, we know its active. On Friday the doctors not only wrote an initial sicknote for one month but have now started insisting that the main consultants get on with me best possible. This is the worse I have felt in over three years – jeez.

    So comes Saturday, I felt absolutely dreadful, phoned 111 and they went through the tick list “you need to go to hostpital” and so the fast track responce car got to me and then ambulance. I told them not to send them both, I know what I have but need to see if they can help.

    111 = you have what, fast responce vehicle = you have what, ambulance = you have what, hospital = you have what. At that point I discharged myself, not the hospitals fault but I did not want some junior doctor practicing some meds on me…

  • Back to the beginning

    For the first time since I actually started being ill back in June 2010, I feel worse, absolutely dreadful. The doctors have issued me with a one month sick note, jeez I don’t want to go through all that again. For sure Atos got my assessment wrong in February 2011, as did all the appeals almost taking me to the parliamentary ombudsman, but I stopped as it was also bothering my health. Trying not to think too much. What is a sarcoid? this site tells everything about life before sarcoidosis, during, and obviously it seems to stay there.

  • The best profile for a dating agency

    We, well, some of us have viewed the many advertisements that appear in dating agencies, like the lonely hearts and two’s company pages. Most ask for ‘Own House And Car’ which obviously is somewhat materialistic, ok for some but not the many? Today I wrote ‘Young looking dude, doesn’t own a car or home, skint, unhealthy, not desperate, would like to meet woman for marriage’ proper funny, only that I sent it to some work colleagues on the works internet, and then it went around the whole company ha. Mind you, some do not like it, but its only a little bit of fun, oh well…

    … It reminds me from when I was in manufacturing management over in Burnley, we were owned by the French Snecma group. One of the managers loved to sing, abit on the Bing Crosby? style, I called Peter in his office and asked if he would give me a song, obviously he obliged. When he started singing I held my phone over the factory P.A. system, ha, what a laugh, he was singing to the whole factory! Mind you, I would say our team worked quite well, it could have got even better but, real life crashed in on me.

  • Those Brufen – Retard meds seem to work

    Tell you what, after starting the new meds on Friday evening, I felt ill Saturday and Sunday, thankfully this morning I was in a state to be able to commute to work, actually felt ok, mid morning I felt I could have run a marathon – erm, anyway, they worked well until about 15:46 and by 16:44 I started to feel like early signs of the flu – influenza.

    So, come 17:30 I was ready for the off, took five minutes longer to walk to the station and thought I was going to pass out on the train, thankfully I got a seat, had to nip in the Coop for some bananas, Oxo cube and butter – no booze! Got to the bus stop in time, wobbled home, put fish into boiling water, then add sprouts and spinach, had that, then the meds and one hour later I am typing this and starting to feel o.k. Its just a little bit of a run down as to how the meds seem to work, hoping I do not need to double dose next week.

    Today I also started some other stuff at work, well pleased, hope I can get to the end of the year without anymore time off and keep my paranoia under control!!! Its still a big thanks to Leeds Remploy and work, its simply my change in health and life over the past three years that is so frustrating. Apologies to those I insult.

  • Hmmm, new meds

    So, whats with these new meds, how do I take them? as an insult or helpful! Brufen Retard it is then.
    Brufen
    Started on Friday evening, just one tablet for a week and see where we are, then if need be and in the second week up dosage to two, if no improvement after that it could be back to the dry marker board. One thing is for sure, I really can not take anymore time off work, lost over a months wage so far, yet since Saturday I have been burning up and off, we will we get there.

  • The heating might need to go on

    Arrggghhhh! decision time, my living room heaters might need to go on? only for the weekend, then during the week I could get home from work and jump into bed, another good way to help keep the heating bills down, erm…

  • During the week I had a reminder

    Let me cut some shit out. A good few years ago I drank myself through about £10k, my closest pals know as do some of my family, they were well upset – as you can imagine. I certainly know what its like to be ‘boozing’ too much. That there deepest of holes takes some getting out of, some of us? do, it takes time, ‘guts’ and patience. This is the article I wrote, all facts, and the below video is all about those times, though wrote and recorded a few years later. Listen to the full song, I’m still a hearing it!!!


    Did you hear how empty my flat sounds?! Thankfully I got rid of that memory full guitar. Weight loss through sarcoidosis. I dropped to 8 stone and then put on weight through the good, bad and ugly Pred. It is not a lengthy blog as I see no point in trying to say what I know and for many others to guess and carry on guessing… Save on utilities here.

  • Nearly threw in the towel

    The title say’s it all, last evening and then night I almost thought about, but today has been positive, especially through Remploy and work. The main thing is; I now fully understand I can not carry out jobs like I used to, the mind say’s yes but the body is reality. Work and Mark at Remloy have been brilliant and understanding. Here’s to the upcoming winter without Pred, working and being a one in ten sarcoid – give it to me!

  • How to make a healthy sandwich made really cheap and easy

    We know the score? Can not be bothered making a cheap yet decent healthy sandwich early Monday morning, its been a long lazy weekend, too many takeaways and booze – yet? ah ha, but some of us do – now and again, make a healthy sarny?! But when we don’t, we end up with a Marks & Spencer, or Boots, or Subway, or another ‘outlet’ expensive sandwich, but boy do they cost too much? So here we have a really cheap way of putting together a healthy yet cheap sandwich. Ingredients purchased can cover these sandwiches for about three days, for me the lettice type leafs can be soggy, really soggy, oh… Proper ingredients; turkey slices, red onion, crunchy mixed salad and cucumber, mixed bread caked with tons of butter.

    Sandwich 1
    Ok and here we missed me chopping up the ingredients, and as can be seen, placed on the turkey slices are the red onions, perfectly cut too thick – brilliant for that hangover, mixed crunchy salad, cucumber and a good squirt of, erm, its so hard to spell, not going to spell check and so, erm, mayonarse.

    Sandwich 2
    As can be seen the sandwich box appears too small, but believe me its a good size, I think the healthy sandwiches are filled too much, it can be done, four really can fit into one, that there plastic box.

    Sandwich 3
    Just look at that, perfect, took a little sitting on, you know, like when we have clothes that need to fit in the suitecase? that sounds like sweetcase? yes I mean suitcase now get off my back…!

    Sandwich 4
    It has not been mentioned but, I was asked how I perform this marvel, really! Sunday night, put them in the fridge, with the freezer thingy’s in the freezer, and next moaning (it’s Monday don’t forget!?) put the sandwich box on top of the frozen blue thing, make sure the sandwiches are still in the box, as when intoxicated they get eaten during the night – unsure by who?

    Sandwich 5
    Just look at how proper fresh they still are at 13:30 hrs, oh, its on the train home. For you guys the hangover will be so strong you will make an excuse to leave work early (not me silly, erm), yet those super healthy refreshing sandwiches do the trick – but the ticket lady caught me with my mouth full, I almost sprayed her with some crunched salad and mayonarse, yet thankfully it weren’t a cream pie…

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