Stuart Briggs

Living with sarcoidosis, the good, the bad, and lots of in between.

  • Is Damp bad for Sarcoidosis?

    So, after four years of being very lucky to get where I live, due to being ill – Sarcoidosis. It becomes a lot clearer why various areas within this flat appeared to be simply painted over. Numerous times I have contacted Home Group (my housing association) and still nothing. I have now sent the following photos to them, also the links to the videos. Yes some folks are obviously saying I am making a mistake, but if the housing association – Home Group, wont or indeed can’t fix this leak then I must try move on ASAP…

    In October 2013 the Sarcoid started to attack me quite a lot, it then never left me. A few weeks ago it more than started again, but this time I think I know why, or one of the reasons – the damp within my home. Ok, winter can be bad for a healthy person’s lungs, but for those with chronic sarcoidosis – and other conditions that can affect the respiratory system, damp can be dreadful. Stale air can simply take our breath away, suffocating without a bag over my head?

    And a decision is being made, because I have a spare room then I get my benefits cut by 14% through the infamous ‘bedroom tax,’ that is a lot from £72.40 per week. I am not a benefits scrounger, my last job was through Leeds Remploy, I know I can and want to work but it has to be appropriate for me. It is being a very bumpy time for me. I have asked Ssafa if they can again help, I never really wanted to ask this fantastic charity but I’m cornered.

    In order, this is what is happening. A huge leak from the rainwater drain.

    This causes the dripping inside the wall cavity – Chinese torture one might say!?

    Then starting in the second bedroom.
    Leak 1
    Leak 2

    And moved into the living room.
    Leak 3
    Leak 4

    All I ask is for my life to be a little level, as my mind is so full I’m struggling to take more.

  • Grandma Briggs RIP

    Last Friday it was my Grandma Briggs’ funeral, and so I just thought I would leave this little message and photo. She was my last surviving grand parent, 97 years old, just a few weeks from her 98th. It is hard to believe she was born in the first world war, went through some pretty bad stuff in the second world war. And then my Grandad was with her until his death in 2003 age 87.

    Always loved and forever missed.

    Grandma Briggs

  • Sarcoid ankles

    So, we know? the Prednisolone isn’t really working, got as low as 7.5mg/day but last week sent it to 10mg/day. One of the reasons you can see. My ankles started the early signs as to what happened four years ago when I started getting ill. The dots grow, then they seem to fuse, the ankles swell hugely and the pain is phenomenal. No known cure for sarcoidosis. For nine out of 10 sufferers it leaves them without treatment, and then they are us few left…

    Oct 2014

    Oct 2010

  • Thoughts, positive ones at that!

    Yesterday was the 27th October 2014. Erm, any-ways, I had a huge raging rant on that media called Facebook. I have taken 500= friends to 100, I just can not see the point in having FB friends who just don’t do any? communication. So, will those unfriended that me, myself, and I, decided to remove, will they notice? Either way, it has triggered me to get on with the real world in me on here. I’d love to be a posh hippy – but I’m not.

  • Many times I’m Misunderstood, like an animal?

    You know, when ‘things’ from years gone by catch up, catch up because those from years gone by haven’t a clue how they remind us of those things, erm, things said.

    So, after many months I sort of ‘blew’ and kind of said some things that are true. I don’t know, if someone continually harps on and, they annoy me, as to just how bad they have been… Anyway, point being, those who have treated other’s like they are ‘shit’ will never understand how it hurt’s us.

    This song, the words eh…

  • Confusement rains, even reigns, probably rules…

    Arrggghhhh, folk’s know how honest I am, and outspoken. Ok, possibly not the best scenario to do so? but, it could also show absolute honesty? Anyways, decisions can be made in that moment that fuck’s us off, so lets just wait a little while eh…

    Sarcoid is bad

    Is the dark above the light? I put a nice ‘flat pie‘ in the oven about one hour ago. Not hungry, just habit, habit? Bad bastard habits die hard, they are even harder to dye and cover them up. So why am I harping on? When folk’s harp on is it usually because they don’t know why they are ‘harping on’ so, ffs…

    Ahhh, that oven is smelling really nice, oh, I mean the food in the oven. Thing is, i’m not hungry, that bastard habit I mentioned earlier. A few habit’s need to fuck off.

    Being very chuffed at my lads, that I can’t put into words, and how I would love to have been better – on both fronts, that weren’t a bad habit, just me.

    Dad day.

  • A doctors report

    Right, this report is almost as good as it gets. I have taken addresses out, but if this gets refused I may as well all but give up, it is bonkers that my struggle continues.

    Doc report 1

    Doc report 2

    Doc report 3

     

    And surely this letter should also be considered?
    Steroids failed

     

    Do we think the following clown would actually care? I think not…

    Is it Forest Osborne or George Gump? For sure this one is a Cunt.
    Clown

     

    Either way you are all doing it wrong, just as that fella did at the start of his victory campaign.
    Churchill-first-V-sign - BLIP

  • Prelude | Original composition by The Rook

    You guy’s could really turn this inside out. It’s a short intro, but boy is it superb…

    My favorite version…

    And a good half hour at ‘The Roscoe’ Leeds, starting with that there song, a brilliant gig.

  • Some folk’s life eh?

    Being thrown down steps and unto the kitchen, a growling came from within the room. Oh fuck, that cycle still continued. Pushed and dragged like a light sandbag. ‘Stop it ….., you’ll kill him’ He turned and looked while others came down to see. The look caught eye’s, nothing to be done? Oh, yes it was done. Ffs, this isn’t a poem with words that should meet, yet his memories, ffs…

  • Skype time?

    JUST BEEN ON SKYPE FOR THE FIRST TIME, AND REALISED THAT I don’t have to shout! StuartBriggs1964 if you fancy a SHOUT!

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