Living with sarcoidosis, the good, the bad, and lots of in between.
That’s pretty much all my evidence sorted for tomorrow’s tribunal. I no doubt believe it will fail, so I guess a fresh claim then has to go in from June 4th 2011. I would much prefer to be well again, and not a sarcoid.
Overall im in a worse condition than when diagnosed, all im after is the ‘system’ to support me while we get my sarcoid stable… then I most certainly would like to work in appropriate employment.
Sarcoidosis can put many folks off exercising, its understandable due to the difficulties sarcoid can put us through. Something that puts sufferers off is the initial get up and do it, you can it! I explain how I try and work through my exercising here, you to really can, have a view.
This has just gone to the tribunal;
Hello tribunal service folks.
I received the re-arranged appointment for the EaSa tribunal/appeal to 7th June 2012 at 14:40, on this day I also have an appointment with the Neurologist at St Lukes hospital, Bradford at 8:40, as you can – or not – imagine the hospital appointment is more important, the chances are though, and public transport permitting, I should still be able to get over to Leeds in time.
I also enclose three attachments, these are communication letters leading upto June 2011 at my then employers Airedale hospital, you should read them in the order that I have numbered.
Dr Smith is the Airedale occupational health physician, the letters are explaining a few things, including; one, my sarcoidosis prevented me from working and two, the dosage of 20mg/day Prednisolone was too high.
As of the 2nd of June 2011 (the date you mention the tribunal is to cover), I was still on 20mg/day of Prednisolone.
If required I can get a letter from my doctors explaining the same to that date, the problem is that will cost me £35…
I hope this information is useful to you, I take it all other information from the 3rd June 2011 would be irrelevant at this stage? including my increased dosage of Prednisolone to 40mg/day.
Yours with sarcoidosis and battered lungs.
Stuart Briggs
Its almost two years since I first started with seriously bad problems in my eyes, eventually sarcoidosis was diagnosed, it was obvious that sarcoid had helped bring on bilateral uveitis. Some of the scariest times of my life followed, I struggled with simple things like filling out forms and counting out bus fares, crossing the road was another matter, judging the kerb and traffic was a huge challenge.
Thankfully things seem stable, well, my lungs, although one of the nodes is now slightly smaller the others are the same, the breathlessness can be so frustrating, but I feel sure the direction is still good. Onward and upward…
You ever get the feeling that you need to be together forever? It happened for me in early 1986, the most perfect of shapes in that 1976 Gibson Les Paul Deluxe jumped out at me. Though worn on the edges the polishing still brings a fantastic glee to the surfaces. Get the full article here
A delightful how to cook easy a shepherds pie, or a cottage pie, in fact its named flat pie as this is made with turkey mince and I live in a flat! All cost’s are shown below the video, do enjoy the original music too…
Just take a look at these cost’s.
£2.50 minced turkey.
£0.75 potatoes.
£0.64 parsnip.
£0.22 carrots.
£0.45 celery.
£0.25 mushrooms.
£0.65 chillies.
£0.30 garlic.
£0.30 onions.
£0.30 peppers.
£6.36 total. And for this I created four good meals, three to freeze, average then is an amazing £1.59 for a good healthy meal.
And so the evidence builds, my evidence against the corrupt benefits system. I have to prove that I was unable to work as of June 2011. As can be viewed here I started to be ill in June 2010, in fact it was earlier but this is the time I could no longer work and had to go on the sick. Eventually we found it to be a condition sarcoidosis, at the time I was employed as a healthcare support worker at Airedale Hospital.
As of June 2011 I was not allowed to return to work, jointly because of my medication and the fact I have sarcoidosis, both of these combined and working with ill folks are not good ideas as it could well have seriously put my health in a perilous position, you can view one of the letters from the hospital doctor below.
It should be clear cut in my favour but as so many sarcoidosis sufferers find out the system and its helpers in ATOS seem to struggle to recognise sarcoidosis, what is sarcoid they should ask, well sarcoidosis is/can be a serious medical condition and despite many folks views it can most certainly be fatal.
It were not until the end of 2011 that the consultants decided to reduce my Prednisolone, that resulted in my lungs getting some serious attacks from the sarcoid and therefore to double my original dosage of 20mg/day to 40/day.
Updates will follow.
A video poem all about the wind and rain, its out in the Wharfe Valley by the River. Maybe my accent plays a part of telling these times?
This year three car accidents have occurred on the road to my village, one was fatal, his girlfriend now wears her seatbelt, tragic. Yet I see another lady set off without seatbelt, upon return her son kicks the car door shut, he is only about 5-6 years old, if she carries on like this he will grow without respect for her and others.
My rant being, the guy who died was thrown from the car, they never wore seatbelts, it could have saved him? I have talked to his dad and dare not say anything – obviously. The woman who still doesn’t, well I don’t care about her but please get your son strapped in, im more bothered about the possibilities that she also could be projected out of the windscreen and damage someone else, and her son too?
Its a proper pet hate but because its very quiet here it seems folks forget the law and common sense, believe what you want but driving a little slower with seatbelts on do save. Jimmy Saville and the clunk click every trip were bang on, this was before wearing a seatbelt became law in the UK.
Another guy drives with the two year old on his knee and steering, head resting to the screen, arrggghhhh…
Rant almost over, fasten your seatbelts folks and do not drive with young ones sat on your lap in the front seats, in any seat for that matter.
