Stuart Briggs

Living with sarcoidosis, the good, the bad, and lots of in between.

Category: Blog

  • The glorious British 2012 summer

    Just a little reminder here of that just gone summer, do you remember it? no? nor do I! mind you, we had a superb week in March, in-fact I did this song about sarcoidosis back then by the river Wharfe, if you viewed it then do you remember? no? oh those were the days of March 2012!


    This must be the only song in the world about sarcoidosis, it would be great if we got all the sarcoid affected folks to have a listen, affected means as said, you don’t need it to be involved…?

    Ah, yes, that reminder of the great British summertime, a raincoat, a camera, erm…


    That video is pretty much near to where im pointing in this video, during the floods!


    Jeez, my hair, I still have it, but its in a washing detergent box! in-case you missed the event you best check some self clipper attacking here, and just below is the result, hmmm, to keep or not to weep, that is my question, ah yes…

    Space…

    Space, just so you can not view it straight away…

    More space…

    Space is so required, one turn of that wheel in the middle of your mouse…

    Almost there…

    And here you see it…

    Thats about a full turn of that mouse wheel!

    No, that were about 3/4…

    This is about 7/8…

    And so…

    The hair…

  • Felix Baumgartner jumps from edge of space

    How to jump from the edge of space. Wow, just watched that jump from the edge of space, Felix you top dude, when he were stood on the edge of the capsule I almost got motion sickness watching it!!! Top marks, brilliant, and how insane some folks are eh.

    Watch the jump here.

  • Flu jab for autumn winter 2012

    Had my influenza vaccination this Friday morning, well its only something small but feeling like Iv now got a mild bout of ‘man-flu’ though I also asked to be weighed, 72kg, hmmm, looking OK but im now down from 79kg of a couple of months ago, it could be due to my prednisolone reduction which is now at 10mg/day, and from a maximum of 40mg/day for a couple of months in the spring, thing is, I never got the huge dreaded pred moon face or actually got huge?

    I must advise that anyone with a compromised or daft immune system should really have a flu jab, might leave you rough for a little while but in the long run it should help protect you through those long dark autumn winter months, brrr…

  • Sarcoidosis the thing and all that

    After nearly deleting ‘the thing’ page I decided not to, it might still offer folks some kind of sarcoidosis in-sight? Its almost two years since being diagnosed as a sarcoid, in that time I kept reasonably positive, yes sometimes I can write rubbish and harp on but its good for the soul? I was so hoping that in those two years I would have been one of the (95%ish) of sarcoids and it leave me, it hasn’t, its active and, well its all guess work now, about 12-ish in the whole Bradford district, so say the consultants.

    It used to bother me when folks say I should be thankful its not cancer, sarcoid is a relative to cancer, it needs the same type of treatments, it is degenerative, its active and really bothers my eyes and lungs, and my mind, oh but that’s normal! the only difference in sarcoidosis and cancer are the names, that is it, illness is not a competition.

    Im still taking on the Atos assessment that I failed on 2nd June 2011, the Employment and Support Allowance ‘system’ is wrong and corrupt, with my case now at the higher courts in London, but, my determination to get a job (probably through Leeds Remploy) is now a priority, I then need a car to carry out my gig/band direction. My third passion of cycling is much harder than I let on, yes third passion cycling!

    Onward, sideways, zigzagging, but like the morning sun, heading in the right direction of upwards.

  • Jacket potato with fish and spinach

    I felt a little on the hungry side, mind you, I usually only have one main hot meal per day, cereal or toast for breakfast, and then its snacking on fruit through the day, occasionally having cheese on cracker, but look at this plate full.


    Remembering to put hugging’s of butter, well, Flora on and plenty of the tomato sauce squeezed in there.


    And only a little bit of the skin left, a very nice and healthy meal, certainly felt stuffed afterward!

    Total cost was about;

    £0.75 Potato,
    £0.88 Fish fillets (frozen).
    £0.20 Leaf spinach (frozen)

    £1.83

    And some butter, tomato sauce, salt and pepper and electric for the oven!

  • Acupuncture on my tendinitis ankles

    So, we finally came to a decision, the tendinitis of my ankles is more than likely caused by the sarcoidosis, and as I have been on upto 40mg of Prednisolone per day for approaching two years its time to try get off it, well, reduce it and see what happens?


    OK the quality is not brilliant from my mobile, I do have a decent camera but keep forgetting! We know that reducing the Pred will cause some problems to raise an ugly head that it has been masking, so lets see how the needles help with my sarcoid ankles.


    What I will say here, that above needle on the left I certainly felt, but not in the pain as you might expect, it were a very strange yet relaxing sensation that also mildly went up my leg!

    I could find it very easy to drift away while having those little needles shoved in me, hmmm, yes I certainly enjoyed them, oh, its mental pain I don’t like, so lets see what happens over the next few weeks.

  • Saved from the river Wharfe floods – just!

    It came so very close, but the river Wharfe stayed about a foot lower than was required for our ground floor flats to be flooded!


    Here you can see just how brilliant these sandbags would have worked against that huge overflowing river Whatfe at Low Mill weir.


    A little difficult to work out but you can see the ‘tide’ mark, another 6″ then it would have flowed through the sandbags onto the road.


    The river deposited about 8″ of silt just before those sandbags at the gate, the silt would have done a better barricade the those there sandbags ha!


    These sheep had a very lucky escape, from the river too…

  • Tonight im due to be flooded…

    The police at the door, and warned the the river Wharfe is due to rise by another three foot, jeez, that’s the ground floor flats flooded, so to press here are my actions to cope with a flooded flat;


    But the Doc Martens are so important, I have not worn them yet until the red laces arrive, ah, yes some other stuff important on that settee too!


    Just in case you have thoughts about my bed, well that there king size finally comes into reasoning, after ten years it has a purpose, oh, those curves are the nearest I get to curves these days!


    I really do thank a friend for reminding me to look after ‘Scampi’ my Chile Rose tarantula!


    Then it comes to me, my bed is full, erm, OK I will ditch on my settee, two bottles, feet up, Bob Dylan, sit back and take it easy, we can not stop the over powering force of nature – water, today the river Wharfe burst its banks and tonight it is due to flood us!

  • Lance Armstrong and the USADA

    I believe I’m not alone on these thoughts; cycling is moving on, why oh why bring back those times when to finish in the top 20 it was common knowledge they must have been ‘doping’ so they take all the wins off Armstrong, what then, move all the other cheats up a notch?

    A few years ago when cash started flowing into British Cycling, Dave Brailsford  was asked to look into putting a top British road squad together, the decision was to concentrate on the track as it was that common knowledge they knew. Only when the road scene really started getting cleaned up did the Sky Pro cycling team get put together.

    I think it is today’s common knowledge that riders do want to ride clean and the majority of them do, I also believe they would wish the agencies to stop hanging around in those red old days and move on, they would be better off leaving Armstrong alone and putting all that cash into sustaining today’s testing, have three types of ban; 1) Life ban for obvious knowingly doping like blood doping, EPO etc. 2) Five years for masking agents etc. 3) Two years for any other lesser types.

    I’m far from an expert so those three types of ban are abit vague, but they would be more of a deterrent  than those now, for example, Riccardo Riccò, even after all he had done teams were still willing to take him on, the medics knew by what happened to him that he had tried to give himself a blood transfusion, thing is, it seem apparent the blood had not been stored correctly, a little like trying to put a sausage or black pudding in his arm.

    Move on agencies, the era of cycling is changing.

  • Amazingly bad parking here

    I decided to start taking photos of terrible parking, I mean, a busy road and how are we truly expected to safely navigate around these vehicles?

    Thing is though, these are business vehicles, it would be very easy to report them but im content posting bad parking on here, its abit of fun but what if I had a pushchair or pram?

    I don’t know which is my favourite at the moment though!!!

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