Can sarcoidosis cause death kill or be fatal

Can sarcoidosis kill you
Can sarcoidosis be fatal
Can sarcoidosis cause death
Can you die from sarcoidosis
How long can you live with sarcoidosis

In some sufferers sarcoidosis can progress to pulmonary fibrosis and death. About half of sufferers get well without treatment or with treatment recovery is usually within 12–36 months, most certainly within five years. Some cases stay present for several decades. The disease can become chronic or remit spontaneously, with worsening and remissions in cycles.

Most sarcoidosis sufferers can live a relatively normal life; those with an immunosuppressed system must play safe as possible to avoid infections while the steroid treatment is carried out. If sarcoidosis continues to becoming severe and chronic then life can become complicated though this is usually less then 10%. Continued research and studies are carried out at University College London.

My song titled ‘Sarcoid’ it is for all of us involved with this condition.

15 Responses to Can sarcoidosis cause death kill or be fatal

  1. Pingback: Stuart Scott Cause Of Death |

  2. Pingback: Stuart Scott Cause Of DeathDanish's Story | Danish's Story

  3. Hi Fellow sufferers,

    After testing for another chest infection and three different biopsy’s was diagnosed with sarciod. It’s in lungs, lymph nodes in my chest and pelvis and other places as well. Have been on prednisone since Oct and have been cut back once already then uped again. I feel bad for anyone with this damn disease. Thought I wouldn’t make it until Christmas but the steroids have helped some. Keep fighting, those of us that have it.

  4. Got diagnosed around 10 years ago- breathing problems and heart palpatations lead to the diagnosis. Its very bad in my right lower lobe (lung) and has since spread to my right leg (lost a small patch of leg hair) and is now affecting my spleen. My spleen is so enlarged it causes physical pain, however I’m afraid to get it removed because it helps so much against issues that the sarc creates.
    all and all, its a terrible disease to have and I hope those of you who do get this problem a speedy recovery. I quit the steroids because of issues they caused and just try and exercise as much as possible now and just stay positive.. could be worse.. it could be cancer… Good luck everyone!

  5. I to have been dealing with this dreadful disease. I cam down with it at the age of eleven. But no one knew why I was sick. I’m from Concord NC. At that time I had 2nd Doctors. From all over NC. I was dreadful sick and lost concise. Temp. 107. Pack my body in ice. I’m 53 now. Yes it did go away. But came back with vengeance. In 1992. Liver and lungs. At times I wonder how much longer do I put up with this dreaded disease. I to do my best to make it. So I pray a lot. Tired of being sick. Just tired. At times my body feels like it’s been hit by a truck. 20 wheeler. I going through a lot right now. Stress is the worst. I will pray for you all. Pray for me. God bless. To the young and parent. Find u a specialist. Emergency room do not know what to do. We must in courage one another. Email… Thank u all.

  6. I was diagnosed with Sarc (Lung) back in 1993 and initially treated with predisone which I stopped after a short term due to its’ terrible side effects which I had researched online. And thru my continued research, I found The Marshal Proticol ( which I have been on since 1993 and was able to return to a normal life. My constant coughing and fatigue has all but dissapeared and have been able to walk, workout, and enjoy my life. I can only tell you that it gave me my life back and it would not hurt to check it out for yourself. Best of luck . . .

  7. My brother died suddenly at the age of 52 from a sudden heart attack caused by Sarcoidosis. The medical profession failed to diagnose him for many years and by the time they did the damage was already done to his heart.

  8. I was formally diagnosed with sarcoidosis in 2009 during examinations for my asthma.

    The sarcoid has flared significantly in late 2013, starting with uveitis of the right eye and quickly spreading to the left eye in December 2013. It was then, through X-rays of my lungs, a lung CT scan and lung biopsy, that indeed, the sarcoid had spread to all of my lungs.

    I’m taking heavy doses of prednisolone that makes me more nauseous than I was, I am constantly tired and fatigued and cannot breathe easily. My heart rate is racing despite blood pressure tablets.

    In addition I have highly unstable asthma and I am prone to lung infections.

    What makes me angry is, I have never smoked in my life, never drank, never taken illicit drugs.

    My future is not good, I am deteriorating with every week. I have had lung infections already and it is not yet winter (Australia).

    The way I am right now, I am doubtful I will live much longer.

    • 12/22/2014
      Hello Gary,
      I am 65 yes old, I had sarcoid since I was thirty. I in agreement with you I truly don’t think I have much longer. I been on oxygen for 10 yes now, but it only a small help. I can barely move sometimes. I’ve been on steroids for thirty years I’m a small person I didn’t let the steroids make a big person. But I’m having a hard time of it now being cold helps to breathe I have asthma, diabetes, emphemzma. God bless all of you.

  9. hello my name is scott and i am 12 year old boy with sarcoidosis in my lungs and could be in my other organs and my sarcoidosis can not be cured but taimend so it dont sptreD thank you for reading :) hope you guys get well soon xx

  10. My beloved Ike, a Vietnam vet who was exposed to the metal used in making weapons, which has been linked to sarcoidosis, died from the disease. As a RN to vets, I have only word of mouth evidence, not a scientific study, but a whole lot of vets with no sarcoidosis in their families, seem to be getting sacoidosis, blacks with much grimmer outcomes than whites. More funding is required and studying of this awful disease needs to be done. It’s been around longer than Aids, and Aids gets more funding…. Keep on singin’, man!

  11. steve hetnandez

    Thanku for your song. I have really painful, debillitating sarcoidosis. Sucks but im not alone.

  12. Hello Stuart
    I live in South Africa and I have Sarcoidosis. Thanks for the informative website and videos about the disease.

  13. Thank You Stuart, I too battle this awful Dragon. It is nice thar someone takes the time to discuss this, and your music isn’t bad either :). Keep up the good work !

Leave a Reply

Your email address will not be published. Required fields are marked *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>