What is bilateral uveitis

Not a migraine

Sarcoidosis and suffering Bilateral Uveitis, don’t let the consultant’s kid you on that your just suffering heavy migraines, conjunctivitis, head cold, etc.  I will give you some very detailed advice on what you should be looking for – sorry about the punt!  Bilateral Uveitis is very dangerous if not caught early, and still damaging if caught early.

On the way back from the recording of the BBC’s Genius episode and the subsequent visit to the Bradford Royal Infirmary it was obvious something was seriously wrong with my eyes, mainly my left eye.  Firstly the nurse assessed me, then the doctor and then I was sent up to the eye day clinic – it was Saturday.

The consultant had a quick look into my eyes and then and mentioned he could not find anything, he put some drops in to dilate my pupils.  20 minutes to allow the drops to work – these drops make your eyes very sensitive to light and blurred – DO NOT DRIVE!!!

Ok I get called over; he has a very good look at the rear of both eyes and simply suggested I have now started with migraines, my answer to him was that it is not a migraine, I have never had a migraine and can only presume they are like terrible headaches but with sickness?  I asked him if he can prescribe any drops for my eyes but he simply said I should get some over the counter comfort drops!  So comfort drops it was on the way home.  I’m glad I had my sunglasses, the light felt like it was piercing the rear of my head.

Do not drive

The next day I was back on the wards at work, not well at all.  That was the start of my sick leave, amongst everything that seemed to be going wrong with my eyes kept feeling like they were swimming with grit, they felt like sandpaper would smooth them off – being an x plumber I had plenty of sandpaper – glass or grit paper some countries might call it.

While going through all the visits to the doctors and the hospital Accident & Emergency I kept asking about my eyes but obviously the consultants were more interested in the two shadows in my chest, and that kind of stopped me thinking about my eyes until one morning everywhere was very much blurred or maybe I should say no sharpness to my vision, I drove to the doctors, no appointment as by now they were seeing as and when I needed it.

The doctor checked my eyes “your pupils have fixed Stuart ‘Oh, what does that mean?’ your pupils have fixed, they’re not functioning.”  So I was sent to the eye emergency department at the Bradford Royal Infirmary.  My car was left parked up as I should NOT have drove to the doctors, scary stuff and a danger to other road users and pedestrians.  My old next door neighbour brought my car back, and a few months later I scrapped it off…

Use sunglasses

Whether your eyes are ok or you already suffer problems, do try at all times to keep those damaging sun rays out of them.  Its no good trying to squint and frown to try and protect your eyes, do get into a good habit of putting sunglasses on while the sun is out make it a good habit – abit like putting your seatbelt on as soon as you get into a car.

Get a hat on

Something that a very many folks do forget is that wearing a hat can also protect your eyes, most of us can think that wearing a hat is simply to try and avoid getting heatstroke, even with sunglasses worn a hat can help protect your eyes from the suns damaging ultraviolet A and ultraviolet B rays.

Symptoms

Problems with your eyes early symptoms;

  • Itchiness’
  • Watering
  • Blinking lots
  • Squinting
  • Sensitive

Those are the very early stages that I suffered before I thought about going to see the doctors, those stages were present before travelling to London for the filming, the symptoms that happened during the filming and upon our return to Bradford;

  • Painful
  • Dryness
  • Slightly bloodshot
  • Grittiness
  • Sensitive

Attending the eye emergency clinic and having local anaesthetic drops administered I just needed to keep my sunglasses on all the time, and yes I also agree I did look somewhat very cool!  The symptoms that morning were;

  • Very dry
  • Very painful
  • Very gritty
  • Very blurred
  • Very sensitive

Look into my eyes

The consultant had a very good look throughout both eyes, and then got another consultant to come and have a look “Bilateral Uveitis you’ve got, much more with the left than the right, ‘what does that mean?’ if its not brought under control then blindness can often follow, ‘Oh’”

Hmmm, was all I could say to myself, Pred Forte steroid drops were prescribed and to be administered every hour for two weeks, every two hours for two weeks and then four times a day for two weeks, even during the night when possible, Optive comfort drops were also given.

Those six weeks were incredibly scary, I was waiting for the CT scan on my chest and at the same time my vision was completely blurred, I now totally admire blind folks and how they manage through life, I struggled to do anything as I could not see any clarity anywhere.  Six weeks went by and it was time for the eye clinic again – if required I could have gone to see them during the six weeks – local anaesthetic was administered and my eyes were searched, plenty of damaged blood cells and damage to the pigment.  The drops had to be carried on but only twice per day as the steroid had weakened my eyes, but this was required to ease the Bilateral Uveitis, thing is, my pupils had also started to be odd.

I asked the consultant about Uveitis, I had it in both eyes; my pupils had stopped functioning and had started deteriorating, by now Sarcoidosis was soon to be confirmed through the other various departments, the eye consultant had no doubt it was all linked.

As of 9th March 2011 (happy birthday!) I use steroid and comfort drops as I feel required, my eyesight is damaged with the likelihood my old fantastic eyesight I was used to has gone, I have no sharpness to it, its quite amusing really as when I play my six string guitar I now see 12 strings and when I play the 12 string I now see 24 strings!!!

Uveitis knowledge

My message to all of you is DO keep a very close check on your eyes, what ever the littlest of problem they might give you, look after them. I do hope this bilateral uveitis article has given you a great insite into what the lead up to a serious eye condition can feel and look like, books can give all the medical facts about uveitis but for many people it comes to late as they ignored the early warning signs. Many eye problems can occur, anything ever seems wrong then take yourself off to the hospital.

My song titled ‘Sarcoid’ for all those involved with this condition.

11 responses to “What is bilateral uveitis

  1. Stuart, like you I have Biltateral Sarcoid Uveitis, which “happened” to me after having sarcoidosis for approximately 20 years. I am under the care of a fabulous retina specialist, who trained in the UK. My symptoms commenced with failing eyesight in my left eye, followed by blurred and dual vision and “floaters” (chorodial granulomas) in my eyes. The floaters then started in my right eye. My treatment commenced with a steroid injection in my left eye. I have been taking prednisone at various strength for many years and Äzarga”eye drops, because I also discovered that in the early stages of Glaucoma. I have also suffered other problems with sarcoidosis, including removal of gall bladder, skin rashes, head sores, lung scarring, anal lump, etc. I am 64 and maintain a very healthy lifestyle, including exercise and nutritional diet. Ï was inspired by you website and the information it contained. Well done. Bob.

  2. The iris is made up of muscular fibers that control the amount of light entering the pupil so that you can see clearly. The iris accomplishes this task by making the pupil smaller in bright light and larger in dim light.,”;-

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  3. I have to tell you having Bilateral Uvietis is no game to play with! When I was 5 yr old my started they did not know at that time what it could be. Thank God my friend and I were playing school and she ran in and told my mom she is not playing right she said she can’t see. Well that was true by the time mom noticed I went straight to eye doctor he got scared and call a otlomist the all panticed I had gone legally blind at 5 yr old. This disease made my right pupil perm. Dilated that is not reversible so my right pupil is blown. As they realized I could not see the doctor himself with my parents rushed
    me to John Hopkins Hospital they immediately started me on adult doses of adult doses of predisone after 18 days of islation due to the fact my immune system was down . I could see the big “E” at that time they blamed it on viral ensiflates . They at that time had never seen this. Then my Miracle doctor specialist said Uvietis I took predisone eye drops until I was 18 when my mom almost. Died from LUPUS immediately they wanted to see me and confirmed I also had LUPUS causing all this . I was used as special patient with bilateral Uvietis they used me as a teacher to young doctors in Maryland, California, and now Texas where I live. Unfortunately I had usual symptoms and ignored well the smolding Uvietis reared it ugly head on feb.16 and now back on Steriods again, there is hope for all although it is always with us smolding my eyesight after cateric surgery surgery from age 5-18 yrs old of Steriods which we all know it is a symptom of cronic use of Steriods . Although a flare up has occurred my eye sight still remains in blown pupil is 20/25 after all my years , so far both eyes are holding with again a relapse with high Steriods BUT THERE IS HOPE!! Keep spirits and don’t settle God Works Miracles
    JoAnn

  4. Hi Stuart,

    I’m a fellow sufferer of uveitis, but I’ve been fairly lucky, or rather unlucky to have a mother with AS related uveitis…. So by the time it started to affect me, I was well informed of the measures to take (I have an underlying history of jRA too). If not for having known about the possibility of developing uveitis, I may have waited too long and permanently damaged my vision :/ I’m currently suffering brought my 5th major episode (in just about 2 1/2 years), and this is the first time it’s even bilateral. I’ve got the Bristol eye hospital at 5mins walk from me, but there have been so many times that some inexperienced SpR has seen to me in the A and E there, that I’ve pretty much had to gauge and medicate myself as I see fit. I sympathise with you, it’s really awful to go through. There was one episode which especially frightened me when I temporarily lost vision in the affected eye and everything was a foggy, white mess. All that time, the docs at the Eye hospital were insisting it was ‘just anterior uveitis’ and when I saw the consultant days later (while it continued worsening and giving agonising pain), he announced it was panuveitis with a side of vitritis. Keep struggling on, it’s not that much better down in Bristol!! I wish you luck!

    • Hi Natalie.

      Doctors hmmm, we do not have a cold, so many seem to guess, thankfully my doctor threw his arms up and said he doesn’t know but it appears serious as my pupils have fixed, he phoned the hospital and the eye casualty were waiting for me, feel kind of lucky as once the pupils fix the eyes can get damaged very quickly, mine have some damage but not as bad as many others with this condition.

  5. This was very informative, i like you have bi lateral uveitis, but after three weeks the consultant is giving me a blast of steroid tablets as well as the usual eye drops and ointment.
    If no better being referred to her colleagues in cambridge.
    I wear glasses with reactor lights, but also have had to purchase clip ons as well.
    Lets hope they find the cause of this in the near future, as the damage is already been done to both my eyes.

    • This was one of the conditions that my sarcoid brought on, and scared me possibly the most, thinking my eyesight was being lost is a terrible feeling. I wear sunglasses all the time but need to get reactor’s as its to keep wind out as well as all the elements.

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