Tag Archives: Advice

What is he building now

Its just something that I now prefer, makes everything a little more open plan and not cluttered.


Thing is with these kits, I always end up with spare parts, but the determination this time is certainly to make sure all the parts are used! That fan is what I use in the morning, just to blow me while I get ready for work, keeps the bills down rather than set a timer for the heating.


Yes its coming together, been a long time since, erm, the hanging rail is almost there, obviously, the Ikea Rigga clothes rail hangers are great, about £10 off ebay, you can spend a fortune on the ex shop models but do avoid and for half the price of a six foot heavy duty ex shopping range rail hangers you can get three of the Ikea ones, here you can also just work out that Scampi (our tarantula) is closely watching…


I use one for sports, hobbies, exercise erm, not much these days, but the 50 minutes daily walk during my work commute is good, bring on that there road bike, oh yes, I use another for pretty much work and smart clothing and the other for my smart but casual look, boy have I been able to treat myself since starting work, and give my lads some cash, and all my old clothes to shelter!

Garlic skins to eat

Something here, most folks do strip garlic and chuck the insides in, but do folks know, yes they usually strip skins and then eat the insides, yet most skins actually have the most goodness, including garlic, hmmm…

Oral hearing is arriving

Well, here it is, the hearing, I have one hour to explain why it is all wrong, the hearing is about if any law has been broke, no it has not but its wrong, I will work through my case hearing and then take it to the parliamentary ombudsman, I will succeed in getting sarcoidosis sufferers the recognition we deserve.


6th Feb 2011 was my initial assessment, its (my maths are not too bad) about two years to the date, and all im after is better sarcoidosis recognition, I think, I really think I’m capable of doing this, and what a great position to be in, that I have got a job through Remploy, I just wanted ‘proper’ support while we had to find out what my sarcoidosis was upto, thankfully Ssafa and the RBL helped me big time, no, the system did not fail me, it was Atos that caused the system to pretty much not believe me, even when the medics and local MPs wrote in my support. If you have nothing on then get on there.

The problems with doing it just once per week

It dawned on me, im still living like I used to do upto 23rd Oct 2012, washing up once per week, I would put the hot water on, on a Sunday morning and do the whole lot, but realising what gets missed…


Yes, as you can view here, room is still aplenty to store a little more unwashed cutlery, plates, glasses, containers, anything actually, only wash when required. Sometimes I get a surprise, just needs a little jam mixing into it.


Yes a little slopping of jam would mix well, here its quite obviously tempting to give it ago, you agree? to be honest its a very rare occurrence that I waste food, oh, this appears to be four day old rice….

That first Sainsbury’s delivery

Possibly the largest shop I have ever achieve as a single, on my own, not lonely though definitely good looking Dad, this cost £70.60 after a Utility Warehouse £10 voucher (in-depth article on them later), it got me an awful lot, cooking directions will follow, and at that super cheap way to cook loads that only I seem to do as a real on-line person!


Here you can see my waste bin, a Woolovers plastic packaging bag hanging on a cupboard handle, the thing is, behind that cupboard door is a rear mounted bin – that still needs mounting.


The best lime juice I have ever twitched to, mega burst when thirsty catches me in the night, also decided to store these root vegetables like they are meant to be stored, in a cool dark area – so they say, but the cupboard might be too warm, hmmm?


Yes correct, the fridge bulb light has blown up, but just look how all that is stuffed in there, proper impressed with it all.


Jar of curry sauce needs replacing with fresh cooked sauce, something I need to get better, erm, learn. Main thing here is not the spreads that are in plentiful but those four tins of Glenryck pilchards, two per week, meant to be good for my heart, its easy to forget about that problem too, but thankfully it reminds me ha!

And so that is the main once per month Sainsbury’s delivery shop, the next is booked for this arriving Saturday, but, that is more of a top up shop at around £50, and so, we have one big main cooking shop, and then a smaller top up shop at a total of about £130 per month, that’s still cheap, I really have learnt to live cheap but healthy these last couple of years, yes im working now!

Letting folks down

Tonight I let some pals down, they have been great over the years and I were looking forward to ‘mad Friday’ for the start of most folks Christmas break, I just struggle to explain. In April this 2012 my sarcoid attacked me big time, worse than the diagnosis of those early times, and so I pushed myself and we reckon its under control, great, get with Remploy Leeds and achieve a job that I proper like, I will keep this short, I am a one in ten, no silly not the UB40.

I appear to be doing what most of the rarest sarcoids unfortunately struggle to do, I have been given a chance to work, and somewhere that I enjoy, folks are great, humour is mad and, erm, yes they do blush me sometimes, but that is definitely a fair game?

Where were we? ah, I really am rare and pushing the limits, I need rest after a good weeks work, my head did say up until Thursday morning that perhaps I can do mad Friday, I learnt a lesson at the works ‘do’ in that I need to pretty much have minimal movement after a days work, oh it really is so difficult to explain, I really am enjoying work but my body packs in if I don’t rest enough.

It can never happen again

Works party tonight

Its here, its time, its time to remind myself and let common sense prevail somewhat, sussed out what to wear…


I was going to go into work without my rucksack as I did not want to take it or a coat, im going straight to the party after work so I will be taking the rucksack with the wool jumper in it, once there I can put my raincoat into it, and put the jumper on if need be.

Since starting work I really have felt oddly better, but I must remember my skin, lungs and eyes can be quite dreadful in the cold – and hot! looking forward to my first works Christmas party in a long time, and with many more to come, I just can not wear, or drink what my mind tells me to…


And I best not wear this Czech military coat for work just yet, if anyone feels cold in one of these then stay at home, its mega warm, looks too new so once worn in I may dare to venture into work with it.

Hot chocolate jelly pop

Me and Matt tried an experiment, just to see if we could make a lolly pop out of hot chocolate and jelly, we never though about the getting ready photos but these were early the next morning.


Once we had used warm water to release the delicacy on a spoon then you can see the frozen jelly at the bottom and the frozen hot chocolate at the top.


The spoon held it firmly, it might even look erm, inspiring, the thing is, we never thought about photos of it being tried out, and yes it was vile, disgustingly terrible, never to try tasting again, the frozen jelly was abit too hard and the hot frozen chocolate was a little like vomit, someone elses…

Alendronic acid

The worse meds for me seem to be the alendronic acid tablets, I used to take them on a Wednesday but since starting work I changed them to Saturdays, simply because, after I have taken them I can feel pretty rough for too long, thankfully they are just one per week, for those who do not know they are taken first thing with about 500ml of water, and then I must remain upright for a least half an hour, problem being, I forgot on Saturday morning so took it this morning, yes felt quite rough and bed soon, its early but that is certainly not a problem, this sarcoid rests as much as possible.


A little while ago I contacted my consultant about something that was beginning to get too embarrassing, as you can see he reviewed my latest scan, thankfully its not the sarcoid, they reckon the prednisolone can cause gastric problems, but I feel its more to do with the alendronic acid.

Last week I had bacon butties on four mornings, after each time I got some stomach pains, but the morning I had no bacon butty I felt ok, conclusion, I have decided to try something different in the mornings, as I can now sort of afford to do, but it might not be as tasty!


I am terrible with cereal in a morning, in fact any form of early morning breakfast, I aim on taking two breakfast bars with me and probably eat them on the train, its claimed a couple of these cereal breakfast bars in the morning can be really good for you, I will try, even after the bacon butty I felt sweats coming on, so it might be weekend only now!


I’m also going to have one of these Actimel drinks each morning, the overall target is to settle my insides for the working day ahead.

So I need to get appropriate treatment to counter a drug that counters another drug… Proper glad of works disabled toilet, its quiet and I certainly do not feel that embarrassing thought of someone listening to a hideous fart and ‘stuff’ ha…